Zach Parnaby is a little toddler that was born in Northeastern, England. When he was born, he was very healthy and would do anything that a normal baby would do. By the time he was 20 months old, he had begin to stop walking and he couldn’t move anything. That’s when his parents knew their was something wrong.
On Christmas Eve, the doctors diagnosed Zach with Krabbe leukodystrophy. Krabbe leukodystrophy is a rare disease that can be fatal, this affects the myelin (the protective coating on the nerve cells) sheath of the nervous system. For most cases of Krabbe leukodystrophy, it starts to develop at six months of age, and then the child dies around age two. In the United States, it affects 1 in 100,000 people but there is no cure for Krabbe leukodystrophy.
After telling the Parnabys that their son has Krabbe leukodystrophy, the doctors also told them that Zach only has two more years to live. When they heard this, they wanted to make every last day count. They created a bucket list with a bunch of things to do. This bucket list included things like owning his very own dog, meeting someone famous, and to build a snowman. Lindsey Parnaby said, “We took the stance that if Zach is smiling every day, then thats what matters.”